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Cross sectional,qualitative thematic analysis of patient perspectives of disease impact in juvenile idiopathic arthritis-associated uveitis
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نویسنده
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sen e.s. ,morgan m.j. ,macleod r. ,strike h. ,hinchcliffe a. ,dick a.d. ,muthusamy b. ,ramanan a.v.
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منبع
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pediatric rheumatology - 2017 - دوره : 15 - شماره : 1
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چکیده
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Background: chronic health conditions in children can have a significant impact on their quality of life. the aim of this study was to explore the subjective experience of children and young people being treated for chronic,non-infectious uveitis associated with a systemic disease such as juvenile idiopathic arthritis. methods: a semi-structured interview was conducted with 10 children and young people aged between 6 and 18 years of age and their parents. results: preliminary thematic analysis indicated that both the treatment and complications of the disorder have a significant impact on the quality of life and emotional well-being of patients,not only in terms of the discomfort experienced but also in perceptions of social isolation,anxiety and sense of injustice. conclusion: this study shows that themes including impact on school
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کلیدواژه
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social factors and emotional reactions are important domains influencing health-related quality of life (HRQoL) in children with chronic uveitis. Inclusion of questions relating to these domains should be considered in future uveitis-specific tools examining HRQoL in these patients. © 2017 The Author(s).
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آدرس
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department of paediatric rheumatology,bristol royal hospital for children,upper maudlin street,bristol,bs2 8bj,united kingdom,university of bristol,school of clinical sciences,bristol, United Kingdom, sirona care and health,community children's health partnership,bristol, United Kingdom, department of paediatrics,bristol royal hospital for children,bristol, United Kingdom, department of paediatric rheumatology,bristol royal hospital for children,upper maudlin street,bristol,bs2 8bj, United Kingdom, retinal treatment and research unit,bristol eye hospital,bristol, United Kingdom, university of bristol,school of clinical sciences,bristol,united kingdom,retinal treatment and research unit,bristol eye hospital,bristol,united kingdom,national institute for health research biomedical research centre,moorfields eye hospital nhs foundation trust and ucl institute of ophthalmology,london, United Kingdom, cambridge university hospitals nhs foundation trust,department of ophthalmology,cambridge, United Kingdom, department of paediatric rheumatology,bristol royal hospital for children,upper maudlin street,bristol,bs2 8bj,united kingdom,university of bristol,school of clinical sciences,bristol, United Kingdom
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Authors
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