Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program

Objective:to assess the perception of parents concerning the state of comfort maintained in their infants born with life-limiting conditions and treated by a standardized neonatal comfort care program.study design:participants were parents (n=35 families) who elected comfort care for their newborns diagnosed with life-limiting conditions. standardized comfort measures including family/infant bonding, warmth, nutrition/hydration and pain/discomfort management were provided to all infants. parents consented to receive a questionnaire with quantitative response options and open-ended questions.results:forty-two questionnaires (26 from mothers and 16 from fathers) were collected and analyzed. most parents reported that their child was treated with respect, in a caring, peaceful and non-invasive environment. to the question ‘do you think that overall your baby received comfort’ mode response was ‘always’.conclusion:parents of infants with life-limiting conditions perceive that their babies experience comfort as a result of the care provided by the standardized neonatal comfort care program.