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   Variable management strategies for NEC totalis: a national survey  
   
نویسنده Pyle Alaina K. ,Shabanova Veronika ,Cleary Muriel A. ,Ozgediz Doruk ,Cummings Christy L. ,Kamin Daniel S. ,Mercurio Mark R.
منبع journal of perinatology - 2019 - دوره : 39 - شماره : 11 - صفحه:1521 -1527
چکیده    Background/objectivesnecrotizing enterocolitis (nec) is a serious disease linked to prematurity. a variant, nec totalis, is associated with nearly 100% mortality. there is wide variation in counseling practices for nec totalis. our objectives are to determine what treatment options, if any, are offered to families, and which factors influence these decisions.methodsan anonymous survey was distributed to members of the aap sections on neonatal-perinatal medicine and pediatric surgery. data were analyzed utilizing chi-square tests and spearman correlations, where applicable.resultsin the setting of nec totalis, 90% of the 378 respondents viewed offering life-sustaining interventions (lsi) as ethically permissible and 87% felt that transfer to another center willing to provide lsi should be considered; however, only 43% reported offering lsi to families.conclusionsmanagement of nec totalis remains challenging and significant practice variability persists. most respondents do not offer ongoing medical/surgical management, despite believing it is an ethically permissible option.
آدرس Connecticut Children’s Medical Center, Department of Pediatrics, USA, Yale-New Haven Children’s Hospital, Department of Pediatrics, USA, University of Massachusetts, Department of Surgery, USA, Yale-New Haven Children’s Hospital, Department of Surgery, USA, Harvard Medical School, Department of Pediatrics, USA, Harvard Medical School, Department of Pediatrics, USA, Yale-New Haven Children’s Hospital, Department of Pediatrics, USA. Yale University School of Medicine, Department of Pediatrics, USA
 
     
   
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