Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016)

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Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016)


نویسنده	Jankovic Momcilo ,Haupt Riccardo ,Spinetta John J. ,Beck Joern D. ,Byrne Julianne ,Calaminus Gabriele ,Lackner Herwig ,Biondi Andrea ,Oeffinger Kevin ,Hudson Melissa ,Skinner Roderick ,Reaman Gregory ,Pal Helena van der ,Kremer Leontien ,Hartogh Jaap den ,Michel Gisela ,Frey Eva ,Bardi Edit ,Hawkins Michael ,Rizvi Katie ,Terenziani Monica ,Valsecchi Maria Grazia ,Bode Gerlind ,Jenney Meriel ,Vathaire Florent de ,Garwicz Stanislaw ,Levitt Gill A. ,Grabow Desiree ,Kuehni Claudia E. ,Schrappe Martin ,Hjorth Lars
منبع	journal of cancer survivorship - 2018 - دوره : 12 - شماره : 5 - صفحه:647 -650
چکیده	The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and who have entered adulthood is increasing over time, and former patients will become aging citizens. ten years ago, an expert panel met in erice, italy, to produce a set of principles concerning the cure and care of survivors of childhood and adolescent cancer. the result was the erice statement (haupt et al. eur j cancer 43(12):1778–80, 2007) that was translated into nine languages. ten years on, it was timely to review, and possibly revise, the erice statement in view of the changes in paediatric oncology and the number and results of international follow-up studies conducted during the intervening years. the long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adult with optimal health-related quality of life, accepted in society at the same level as his/her age peers. “cure” refers to cure from the original cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. the care of a child with cancer should include complete and honest information for parents and the child. some members of the previous expert panel, as well as new invited experts, met again in erice to review the erice statement, producing a revised version including update and integration of each of the ten points. in addition, a declaration has been prepared, by the childhood cancer international survivors network in dublin on 2016 (see annex 1).
کلیدواژه	Childhood cure ,Childhood care ,Health ,Quality of life
آدرس	University of Milano-Bicocca/Foundation MBBM, Department of Pediatrics, Italy, IRCCS Institute Giannina Gaslini, Epidemiology and Biostatistics Section, Italy, San Diego State University, Department of Psychology, USA, University of Erlangen-Nürnberg, Germany. University of Lübeck, LESS Group, Germany, Boyne Research Institute, Ireland, University Children’s Hospital, Department of Pediatric Hematology and Oncology, Germany, Medical University of Graz, Department of Pediatrics and Adolescent Medicine, Division of Pediatric Haematology/Oncology, Austria, University of Milano-Bicocca/Foundation MBBM, Department of Pediatrics, Italy, Duke Cancer Institute, Department of Medicine, USA, St. Jude Children’s Research Hospital, USA, Newcastle University, Department of Paediatric and Adolescent Haematology and Oncology, and Children’s BMT Unit, UK, The George Washington University School of Medicine and Health Sciences, USA, Academic Medical Center—Emma Children’s Hospital, Department of Pediatric Oncology, The Netherlands, Academic Medical Center—Emma Children’s Hospital, Department of Pediatric Oncology, The Netherlands. Princess Maxima Center for Pediatric Oncology in Utrecht, The Netherlands, Dutch Childhood Cancer Parent Organisation (VOKK), The Netherlands, Universität Luzern, Department of Health Sciences and Health Policy, Switzerland, St. Anna Kinderspital, Austria, Semmelweis University, 2nd Department of Pediatrics, Hungary. Kepler Universitätsklinikum, Austria, University of Birmingham, UK, Youth Cancer Europe, Lithuania, Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Italy, University of Milano-Bicocca, Italy, Childhood Cancer International (CCI), The Netherlands, Children’s Hospital for Wales, Department of Paediatric Oncology, UK, University of Paris-Saclay, Unit 1018 INSERM, France, Skane University Hospital, Lund University, Sweden, Great Ormond Street Hospital for Children, Department of Paediatric Oncology, UK, University Medical Center, Germany, University of Bern, Switzerland, Universitätsklinikum Schleswig-Holstein, Germany, Skane University Hospital, Lund University, Sweden



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