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integrating palliative care by virtue of diplomacy; a cross-sectional group interview study of the roles and attitudes of palliative care professionals to further integrate palliative care in europe
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نویسنده
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van gurp jelle ,van wijngaarden jeroen ,payne sheila ,radbruch lukas ,van beek karen ,csikós ágnes ,herder-van der eerden marlieke ,hasselaar jeroen ,insup-c (fp7) research consortium
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منبع
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international journal of health policy and management - 2022 - دوره : 11 - شماره : 6 - صفحه:786 -794
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چکیده
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Background: palliative care involves the care for patients with severe and advanced diseases with a focus on quality of life and symptom management. integration of palliative care with curative and/or chronic care is expected to lead to better results in terms of quality of life and reduced costs. although initiatives in different countries in europe choose different structures to integrate care, they face similar challenges when it comes to creating trust and aligning visions, cultures and professional values. this paper sets out to answer the following research question: what roles and attitudes do palliative care professionals need to adopt to further integrate palliative care in europe? methods: as part of the european union (eu)-funded research project insup-c (integrated supportive and palliative care). (2012-2016), 19 semi-structured group interviews with 136 (palliative) care professionals in 5 european countries (germany, the united kingdom, belgium, the netherlands, hungary) were conducted. a thematic analysis was conducted. results: integration of palliative care calls for diplomatic professionals that can bring a cultural shift: to get palliative care, with its particular focus on the four dimensions (physical, psychological, social, spiritual), integrated into historically established medical procedures and guidelines. this requires (a) to find an entrance (for telling a normative story), and (b) to maintain and deepen relationships (in order to build trust). it means using the appropriate words and sending a univocal team message to patients and being grateful, modest, and aiming for a quiet revolution with curation oriented healthcare professionals. conclusion: diplomacy appears to be essential to palliative care providers for realizing trust and what can be defined as normative integration between palliative and curative and/or chronic medicine. it requires a practical wisdom about the culture and goals of regular care, as well as keeping a middle road between assimilating with values in regular medicine and standing up for the basic values central to palliative care.
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کلیدواژه
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integration of care ,palliative care ,virtue ethics ,diplomacy ,integrated care
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آدرس
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radboud university, medical centre, department of iq healthcare, netherlands, erasmus university rotterdam, erasmus school of health policy & management, health service management and organisation, netherlands, lancaster university, international observatory on end of life care, division of health research, uk, university hospital bonn, departmentof palliative medicine, germany, university hospital gasthuisberg, department ofradiation-oncology and palliative medicine, belgium, universityof pécs medical school, faculty of medicine, institute of family medicine, hungary, radboud university, medical centre, department of anesthesiology, netherlands, radboud university, medical centre, department of anesthesiology, netherlands, , uk
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Authors
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