International Cleft-Care Organizations in the United States: A Systematized Review

Introduction: although there are several international cleft-care organizations, there are variations in how these organizations are structured. the purpose of this paper was to analyze international cleft-care organizations based out of the united states. we provided an analysis of each, with a specific focus on team structure, funding, location, and model of care. methods: a systematized review was conducted using pubmed using specific mesh terms and related keywords. organizations screened had to have the following inclusion criteria: (1) be based out of the united states (2) have a valid web presence. results: nineteen unique international cleft-care organizations were identified in the database search. most international cleft-care organizations included in this review had originally started with the vertical model and, over time, adopted a diagonal approach including a team-based structure, resulting in an increased need for volunteers. most organizations reviewed in this paper also demonstrated expansion of care beyond cleft lip and/or palate treatment. the cost of trip per volunteer was variable. the number of trips per year ranged from a minimum of one trip per year to a maximum of 150 trips. conclusion: throughout the analysis of each international cleft-care organization, a common theme of sustainability and self-sufficiency was present. the data compiled in this manuscript enables critical appraisal of various cleft-care organizations, comparison of different models of care, and provides insight on engaging in international cleft-care initiatives.