The Quality of Life of Children with Hemophilia in Shiraz, Iran

Abstractbackgroundhemophilia might impact the quality of life (qol) in children and adolescent. this study aimed toassess the quality of life in children with hemophilia and identify the factors that predict their qol.methodsit was a cross-sectional study. a consensus sample of twenty-seven male children aged 8-16 yearsold with hemophilia participated in this study during 2011. the haemo-qol questionnaire versionage group ii (8–12 years old) or age group iii (13–16 years) was used to measure the quality oflife in children with hemophilia. data were analyzed in spss using spearman’s rho, pearsoncorrelation coefficients, and multiple regression analysis.resultsthe total mean score on the haemo-qol was 54.1±7.3. haemo-qol correlated with the number ofbleeding event and school absence, family income, mother s’ education level, severity of hemophilia,person who performs his/her infusions, insight to health status and insight to suffering fromhemophilia (p < 0.05). qol was predicated by family income (b=-0.69; explained 73% of variance)and infusion of the clotting factor replacement by parents (b=-0.33; explained 81% of variance).conclusionthe qol of a sample of male children with hemophilia was impaired. moreover, number ofbleeding event, number of school absences, mother s’ education level, severity of hemophilia,insight to health status and insight to suffering from hemophilia were associated with haemo-qol. in addition, family income and parent- administration of the product were the factors whichpredict the qol in children with hemophilia.