ارتباط کیفیت زندگی با تیپ‌های شبانه روزی و اضطراب افراد با اختلال صرع عضو انجمن صرع ایران در سال 1399

زمینه و هدف: صرع یکی از شایع‌ترین اختلالات عصبی مزمن است و افراد مبتلا به آن مستعد بیماری‌های جسمی و روانی بوده و با شرایطی روبرو هستند که می‌تواند بر کیفیت زندگی آنها در چندین حوزه مانند اضطراب تاثیر گزار باشد. ترجیحات روزانه و ریتم‌های شبانه روزی به عنوان یکی از عوامل دخیل در کیفیت زندگی بیماران مبتلا به صرع مطرح هستند. پژوهش حاضر با هدف تعیین ارتباط کیفیت زندگی با تیپ‌های شبانه روزی و اضطراب افراد با اختلال صرع عضو انجمن صرع ایران در سال 1399 انجام شد.روش بررسی: این پژوهش به‌صورت مقطعی، از نوع همبستگی توصیفی بود. 120 نفر از افراد مراجعه کننده به انجمن صرع به روش نمونه‌گیری مستمر انتخاب و براساس معیار ورود به مطالعه واردشدند. بازه زمانی نمونه‌گیری از خرداد تا مرداد ماه سال 1399 بود. شرکت کنندگان فرم اطلاعات جمعیت شناختی، پرسشنامه صبحی - عصری (meq) ، پرسشنامه اضطراب بک beck anxiety inventory bai) ( و پرسشنامه کیفیت زندگی quality of life in epilepsy inventory 31item (qolie31p) را تکمیل کردند. برای تحلیل داده‌ها، از آمار توصیفی، آمار استنباطی و آمار همبستگی و جهت تعیین عوامل پیش بینی‌کننده کیفیت زندگی مبتلایان به صرع از مدل رگرسیون خطی چندگانه استفاده گردید. داده‌های جمع‌آوری‌شده ، توسط نرم‌افزار آماری spss، نسخه 16 مورد تجزیه و تحلیل قرار گرفت.یافته‌ها: میانگین سنی افراد مورد پژوهش 42.14 سال بود. بیشتر نمونه‌ها از نظر تیپ‌های شبانه روزی در وضعیت بینابینی قرار داشتند و کمترین فراوانی مربوط به حالت کاملاّ صبحی بود. همچنین ارتباطی میان ابعاد کیفیت زندگی با تیپ‌های شبانه روزی به دست نیامد. کیفیت زندگی در بعد نگرانی از تشنج با میانگین 57.47 بالاترین میانگین و در بعد عملکرد اجتماعی (45.76) کمترین میانگین نمره را داشتند. کیفیت زندگی و همه ابعاد آن با اضطراب همبستگی معنی‌دار آماری داشتند و این همبستگی منفی است یعنی با افزایش اضطراب، کیفیت زندگی و ابعاد آن کاهش می‌یابد. همچنین اضطراب با سطح تحصیلات، وضعیت اشتغال، درآمد، دفعات بستری رابطه معنی‌داری داشته است.نتیجه‌گیری کلی: یافته‌های پژوهش که نشان داد کیفیت زندگی و همه ابعاد آن با اضطراب همبستگی معنی‌دار آماری داشتند که این همبستگی منفی بود. به نظر می‌رسد که می‌توان با بالا بردن سطح آگاهی، تحصیلات حداقل در سطح دیپلم و ایجاد شغل با درآمد مناسب، برداشتن موانع سازمانی مانند تسهیل استخدام آنها نقش موثری در گسترش رفتارهای به دور از اضطراب و به تبع آن افزایش کیفیت زندگی بیماران مبتلا به صرع گام برداشت.

Evaluation of the Relationship between Life Quality and Circadian Types and Anxiety in Iranian Epilepsy Association Members with Epilepsy in 2020

Background Aims: Epilepsy is one of the most common chronic neurological disorders, and epileptic patients are prone to physical and psychological diseases and can experience issues such as anxiety, which affect their life quality. In general, epilepsy reduces life quality indexes and life expectancy, which has considerable economic effects on the person and the society and will ultimately lead to problems such as isolation, dependence, psychological damages and disorders, remaining single, unemployment and declining quality of life. Daily preferences and circadian rhythms are recognized as factors affecting epileptic patients rsquo; life quality. As a mental feeling, quality of life is a psychological phenomenon that may play a role in patients rsquo; life quality through personal traits such as daily preferences and circadian rhythms. In other words, circadian rhythms and anxiety are important issues found in epileptic patients, which can affect their quality of life. Therefore, the present study aimed to determine the relationship between life quality and circadian rhythms and anxiety in epileptic patient members of the Iranian Epilepsy Association.Materials Methods: This was a crosssectional, descriptive and correlational study performed on 120 individuals who referred to the Iranian Epilepsy Association. The participants were selected by continuous sampling and based on the inclusion criteria. The sampling process continued for a period of JuneAugust, 2020. Data were collected using a demographic characteristics questionnaire, including age, gender, level of education, marital status, occupational status, average monthly family income, and medical information related to other diseases, duration of diagnosis, and diagnosis of epilepsy in other family members. In addition, we applied the MorningnessEveningness Questionnaire (MEQ), which comprises 19 questions about the sleep and waking times and appropriate times for physical, mental and conscious functioning after waking up. Moreover, we used the Beck Anxiety Inventory (BAI), which has 21 items about cognitive and physical signs of anxiety. Furthermore, we exploited the Quality of Life in Epilepsy (QOLIE31P) was exploited, which encompasses subscales of concern about epilepsy, psychological health, energy/fatigue, cognitive performance, drug effects, social performance and overall quality of life. The instruments were filled by the participants in a predetermined location through selfreport. Notably, the process took 2030 minutes per subject. Data analysis was performed in SPSS version 16 using descriptive, inferential and correlational statistics and multiple linear regression model to determine the predictors of quality of life in patients with epilepsy.Results: In this study, the mean age of the subjects was 4.14 years. Regarding circadian rhythms, most participants were in an intermediate position (71.7%), which had the highest frequency compared to other circadian rhythms. However, the lowest frequency was related to the complete morningness state. On the other hand, there was no significant relationship between life quality scales and circadian rhythms. Quality of life had the highest score in the dimension of seizure anxiety with an average of 57.47 and in the dimension of social functioning with an average of 45.76 had the lowest mean score among other dimensions. Moreover, the average score of quality of life was 50.32 with a standard deviation of 23.03, which was close to the median of the instrument score i.e., 50. There was a significant negative correlation between the quality of life and all of its dimensions with anxiety, meaning that quality of life and its dimensions decreased with an increase in anxiety (r=0.673, P<0.001). In addition, a significant association was observed between anxiety and variables of the level of education, occupational status, income level and hospitalization frequency. Moreover, diagnosis of other diseases (P=0.001) and fivesix hospitalization times (P<0.001) were the only significant variables in the regression model.Conclusion: According to the results of the study, there was a negative significant correlation between the quality of life and all of its dimensions with anxiety. It seems that effective steps could be taken toward promoting anxietyfree behaviors, which increases the life quality of patients with epilepsy, through raising awareness, considering a minimum level of education of high school diploma as a recruitment criterion, creating jobs with suitable income levels, and eliminating organizational barriers (e.g., facilitation of staff recruitment).