مقایسه کیفیت زندگی بیماران مبتلا به تالاسمی ماژور بر اساس شرکت در فعالیت‌های گروهی در شهرستان بندرعباس

Abstractbackground and objectivesthalassemia is one of the most common chronic genetic diseases whose psychological issues can affect quality of life in patients. research has shown that regular physical activity can increase well-being in a person. this study compared the quality of life in patients with thalassemia major based on their participation in group activities in bandar abbas in 2011.materials and methodsin this descriptive analytical study, 35 patients with thalassemia major having participated in group activities were selected as the case group and 75 patients not participating as the control. data were collected with quality of life questionnaire sf-36 and were analyzed by using spss13 statistical software , mann-whitney and kruskal wallis tests.resultsthe difference between the quality of life scores in the case and control groups for dimensions of general understanding of health, role limitation due to physical health problems, energy and vitality, physical functioning, emotionally related role limitations, body pain, mental health, and overall quality of life score was significant. the mean values of overall quality of life score in the case and control groups were 81.40 ± 3.64 and 58.35 ± 6.14, respectively. the relationship between the overall quality of life score and participation in group activities, starting age for desferal medication, and the number of desferal injections per month was significant in the case group. conclusions patients should be encouraged to participate in group activities and rehabilitative centers should be constructed to improve the level of life skills so as to lead to greater patients independence.